The Progeria Research Foundation

Established by Dr. Leslie Gordon and Dr. Scott Berns - parents of Sam Berns of LIFE ACCORDING SAM - The Progeria Research Foundation has been the driving force behind the Progeria gene discovery and the first-ever Progeria drug treatment. PRF has developed programs and services to aid those affected by Progeria and the scientists that conduct Progeria research. Today, PRF is the only non-profit organization solely dedicated to finding treatments and the cure for Progeria.

National Human Genome Research Institute - Progeria

The National Human Genome Research Institute supports the development of resources and technology that will accelerate genome research and its application to human health. Listen to NIH Director Francis Collins, MD, PhD provide an in-depth definition of Hutchinson-Gilford Progeria syndrome.


First-ever drug trial reverses some signs of aging in progeria, Boston Children's Hospital Research and Innovation, Vector Blog, July 19th, 2013.

Clinical trial of a farnesyltransferase inhibitor in children with Hutchinson-Gilford progeria syndrome Proceedings of the National Academy of Sciences, 2012 109 (41) 16666-16671

The Progeria Handbook: A Guide for Families, & Health Care Provider, of Children with Progeria, Progeria Research Foundation, 2010