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SPECIAL NEEDS ADOPTIONS 1. The National Adoption Center (NAC) offers resources and information on how to adopt children with special needs. http://www.adopt.org 2. Adoption.com offers information and resources for parents of adopted children with special needs. http://www.special-needs.adoption.com EPIDERMOLYSIS BULLOSA(EB) 1. An on-line resource guide offering listings of support groups in every state, medical links and links to organizations. http://www.ebworld.faithweb.com 2. A volunteer non-profit foundation dedicated to the support of medical research of EB, its cases, the development of successful treatments and ultimately, it's cure. http://www.ebkids.org AMPUTEES 1. The Amputee Coalition of America (ACA) is a national, non-profit amputee consumer educational organization representing people who have experienced amputation or are born with limb differences. http://www.amputee-coalition.org 2. The Limbs for Life Foundation provides support and information to amputees worldwide. http://www.limbsforlife.org BURN VICTIMS 1. The Alisa Ann Ruch Burn Foundation offers information and resources for enhancing the quality of life for burn survivors and promoting burn prevention. http://www.aarbf.org 2. The Burn Prevention Foundation provides burn injury prevention education to and advocacy for those at greatest risk. http://www.burnprevention.org CYSTIC FIBROSIS(CF) 1. The Cystic Fibrosis Foundation is a resource of information assuring the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. http://www.cff.org 2. Cystic Fibrosis Research, Inc. provides educational and personal support to those living with cystic fibrosis -- patients and their families. CFRI funds cystic fibrosis research and offers educational and support programs. http://www.cfri.org SPINA BIFIDA 1. The Spina Bifida Association of America offers information on the prevention of spina bifida and resources for enhancing the lives of all affected. http://www.sbaa.org 2. The Children with Spina Bifida Resource Page offers resources for parents of children with spina bifida. http://www.waisman.wisc.edu/~rowley/sb-kids/index.htmlx THE TOM FAMILY EDUCATIONAL FUND http://www.stomfamily.com |
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